Help Baby Defne
Defne is een baby van 1 jaar en lijdt aan SMA type 1 een GEN ziekte die ze alleen in Amerika kunnen behandelen
🇬🇧 Defne suffers from SMA type 1 spinal muscular atrophy. In this severe form, the disease manifests itself as a pronounced inability to move. Breathing and swallowing is also often very difficult for Defne. If left untreated, Defne never achieves important motor skills such as sitting unaided. Unfortunately, more than 90% of untreated babies with SMA Type 1 will not survive or will need permanent ventilatory support by 2 years of age. Life-saving gene therapy must be performed in the USA until the age of 2. The cost is $ 2,300,000. Time is limited! Please help Defne so that she can regain her health.