Gemeenschapszorg: een rolstoel voor Luca
Ik heb middelmatige tot ernstige ME en ben aan het crowdfunden voor mijn eerste rolstoel.
Ik heb deze link gemaakt zodat het makkelijker is voor mensen in Nederland om te doneren. Originele post:
Image description below.
Hi! I am Luca (they/he) and I'm a disabled transmasc singer. I have ME (moderate to severe stage), and am bed-based and 100% housebound without wheelchair (not been outside in 3 months). I also am a songwriter, and enjoy nerding out about Star Trek, sign language, access and ableism.
My wheelchair plan
I need a secondhand rigid frame manual wheelchair, cheap ones are around £1000. This is the first of a three-part plan to meet my mobility needs. The second part is an electric handbike that attaches to a rigid frame wheelchair. Going at cyclist speed, this would be a huge independence boost. The third part is a custom-made, electrically-driven wheelchair that reclines, which would allow me to travel further without having to go back home to rest. I’ll fundraise for part 2 and 3 at some point in the future. For now, I’m trying to raise enough for part 1. (See my Instagram post for pictures of these, my handle is @/rainthedaymusic. All pictures have image descriptions of course.)
Trouble with funding
Due to ME stigma, I’ve been denied access to mobility aids by OTs here. There is a lot of misinformation, like the myth that using mobility aids will cause deconditioning in ME.
So I can’t get my wheelchairs covered by Dutch insurance.
Benefits of a wheelchair
A wheelchair would allow me to go for small walks/rolls and to build towards bigger outings in the future. In the future, a handbike will increase my independence as I’d be able to avoid often inaccessible, unreliable and covid-unsafe public transport.
Doctor’s note & more info
For those of you needing validation from a doctor, my ME specialist supports me in getting a wheelchair (not that a doctor’s validation should matter but there you are). If you want more information on ME and mobility aids, check out @/m.e_and_more.
Donate what you can, even if it’s a small amount, and please share this post! Also follow me on my new IG account @/yr_m.e_friend if you want to keep updated on my (wheelchair) story. (Access: I include captions, image descriptions, alt text and video transcripts.)
Thank you <3
[Image description: the text reads, “Mutual aid request for a wheelchair for a disabled, transmasc singer. Goal amount: £1000.” There’s a picture of a manual wheelchair on the left and decorative leaves on the right. End ID.]